SSC Subcommittee on Factor XIII and Fibrinogen

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This subcommittee is focused on all aspects of Factor XIII and fibrinogen with respect to thrombosis and hemostasis: from standardization issues to basic research and clinical relevance.

Mandate

  • To develop laboratory standards, methods, and nomenclature, if appropriate, related to the field of FXIII and fibrinogen
  • To generate, publish and distribute reports, recommendations and guidance documents for the laboratory diagnosis and clinical management of FXIII and fibrinogen-related disorders
  • To provide ISTH-supported educational programs and initiate ISTH-led international registries associated with FXIII and fibrinogen-related hemostasis disorders
  • To evaluate existing data, determine issues for which data is missing or deficient, identify areas of controversy or pressing clinical/scientific need and discuss methodologic approaches to answer questions raised
  • To create international collaborations for the purpose of planning and executing projects related to the defined needs in the field

If you are a member of the Society and would like to know how to participate in the work of this group, please join the group to receive updates on activity or submit an Expression of Interest Form to the Chairman or any of the Co-Chairmen. We would be pleased to learn of your interest.

If you are interested in the subcommittee and want to follow its activity, please click "join community" to participate.

Leadership

  • Chair - Zsuzsa Bagoly 
  • Co-chair - Magy Abdelwahab
  • Co-chair - Fraser Macrae
  • Co-chair - Akbar Dorgalaleh
  • Co-chair - Nicola Curry
  • Co-chair - Cedric Duval
  • Co-chair - Arijit Biswas
  • Co-chair - Verena Schroeder
  • Co-chair - Woosuk Steve Hur

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Announcements

  • Your participation in the following Afibrinogenemia registry study is being requested!

    Dear colleagues,

    The ISTH SSC on Fibrinogen and FXIII is launching an international cohort study on afibrinogenemia, focusing on rare but clinically significant complications, particularly thrombosis.

    Afibrinogenemia is an ultra-rare disorder with highly variable clinical expression. While bleeding manifestations are well recognized, thrombotic events remain insufficiently characterized and poorly understood. This study aims to collect standardized clinical data to better define the frequency, triggers, management, and outcomes of thrombotic and severe bleeding complications.

    The survey is concise and takes only a few minutes per patient. No protected health information should be included.

    We warmly invite colleagues caring for patients with confirmed afibrinogenemia to contribute cases and support this collaborative international effort.

    Thank you for your participation.

    For additional information, please contact Alessandro.casini@hug.ch

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University of Debrecen
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